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Descriptions Poetry Book

Price: GBP 7.00

Category: Books & DVDs

Product Description

A patient-led description of M.E., composed from the words of people with M.E.

More Info

In late 2021, Action for M.E. supported Alec Finlay, an internationally recognised artist and poet, to craft an online survey that enabled people to describe their experiences of life with M.E. Using people’s words from their responses to the survey questions, Alec created a found poem that powerfully describes living with M.E.

Alec feels this work shines a light on this hidden, invisible illness and the harmful impact of being disbelieved on people’s health and ability to live.

We sell the hard copy at cost price, to cover production and shipping costs. A free copy is available at and an audio version read by Mark Bonnar can be found at

Guidance for readers

This book is distressing and liable to be upsetting. Support is available from Action for M.E. for anyone affected by M.E., including friends, families and carers. We chose to include the words of people with M.E. in their original form, without editing. We recognise that people’s experiences vary greatly; this text can only begin to represent the difficulties that individuals endure. We especially advise discretion in terms of sharing the book with younger readers.

Order by phone

Want to speak to someone, or having issues with the online shop? All items can be bought over the phone on 0117 927 9551,just choose Fundraising option and quote the name of the item you're interested in.

Delivery Information

Delivery Zones & Prices

Zone Available? Shipping Price
Canada No
UK Yes GBP 0.00
Europe mainland No
Asia No
Australia No
Rest of the World No
For Collection No
Israel No

Shipping Info

  • Estimated delivery timePlease allow up to 14 working days for delivery to UK mainland.
  • AvailabilityThis item is in stock and ships immediately
  • Return policyPlease contact to discuss refunds and returns
  • Shipping informationPhysical items are sent via 2nd class Royal Mail. Prices include shipping to UK mainland, overseas shipping is available but please contact for a postage quote.

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